Driscoll Children’s Hospital will host the second annual Cystic Fibrosis Family Day, to be held at the Driscoll auditorium on Saturday, August 4, at 8 a.m.
The goal of the Cystic Fibrosis Family Day is to provide education for families of children living with cystic fibrosis (CF) from physicians and respected experts in the field. The information provided will include current CF research information and infection control, among other topics. The event also will feature a former CF patient who will speak about living with CF.
Cystic fibrosis is a genetic disease that affects about 30,000 people in the United States. The defective gene found in CF patients causes the body to make thick mucus that can clog the lungs and lead to infection. It may also block the pancreas and keep natural enzymes from helping the body digest and absorb food.
“Cystic fibrosis family days have become a staple in many accredited CF centers around the country, and have been going on for years. They give an opportunity to both educate family members, and update them on the latest treatment breakthroughs. Now that we have established ourselves as the CF center of South Texas, it is time to put on our own family day, to honor those on the front lines of this complex, debilitating disease,” said Jon Roberts, MD, Driscoll Children Hospital’s Cystic Fibrosis Program Director.